Tell me how you really feel

I hate invisible illnesses.
I hate them even more when they are no longer invisible.
I hate not being allowed to bask in the sun.
I hate lupus.


There are a few things you need when you have a disease:

1. Humor:

You need humor.

You have to be able to laugh at your own expense. For example- as New York seeks to legalize marijuana for medicinal purposes, I laugh at how many people are going to be so jealous that I can be a card carrying legal member of the marijuana club. Who would have thunk that so many would be jealous of me having lupus?!

2. Positivity:

Positivity is awesome and absolutely necessary when you live with any kind of illness- invisible or otherwise. When I started my blog many people would say- you’re so positive, Talia!

Me? Positive?

Sure, in many ways I attempt to exude positivity- it’s my survival mode. My defense mechanism. It’s how I get through each day because when you have lupus you need to be positive. Otherwise, what else do you have? Oh yes, you have lupus.

3. You must be a realist

Sometimes the glass is not half full- sometimes there’s just liquid in it. This is my other survival mode- positivity doesn’t always work. Sometimes, positivity is the nemesis. I need to get into a worst case scenario frame of mind… And as sick as that sounds, it’s how I can function. If I know that default mode is sick, when I’m healthy I can feel as though I’m on top of the world.

So where am I at today?

Today I hate lupus. I hate it, I hate it, I hate it. Lupus, you suck. Lupus, suck it.

I don’t know what’s going on, but my body has been breaking out in hives for the past week.

Exhibit a:

Ay dios mio! Back, legs, hands, face… They are everywhere.

I called my lupus doctor (aka my rheumatologist) and the verdict is that it could be the sun. It could be my lupus. It could be allergies. It could be none of the above. So take Claritin and give him a call in a week if it doesn’t clear up. And there’s something so frustrating about having a disease that leaves even the doctors puzzled.

On days like today I just need to remember- positivity. humor. realism. repeat. And I guess I just have to wait it out. And take some advice from bears if/when necessary:

And that folks covers your lupus facts of the day- sometimes it makes you itch and no one will be able to tell you why.

Now, tell me a joke or a story to make me smile. Go!